Saturday, August 8, 2015

Always Evolving-------REBOOT

One quote that Bob really likes from the Red Green Show is  "I am a man, I can change".

These trips to Tom Baker and all the interactions with the various professionals give one pause to change.  We had decided that Bob would stay in the hospital and not take passes.  OF COURSE we did not really understand what a pass meant.  Truth be told that, as of this hour, we are still not sure.  Our thinking has evolved though, to accept that perhaps we will try out this "pass thing".  We have been encouraged to try it when one is offered.  Bob will only get them if everything is in order, as far as blood work, temp etc.  They may  be for only 2hours or 4 hours or maybe overnight.  This encouragement came from 3 very different people.  The one gal was with her mom and they were on a 4 hour pass.  They were not leaving the hospital grounds but were "free" for 4 hours.  The patient had her mask on her face, a cap on her bald head and off they went.  She was so encouraging to Bob---well to both of us that we decided that maybe there was something to this pass thing.  I believe that it has a lot to do with the mental health of patient and caregiver.

Bob's stem cells were collected in 2009 and we were informed that now a days  the cells are stored very differently.   Change/evolution  of cell collection!------Bob's cells are in smaller bags so he has 5 bags to be given back.  Each bag has a preservative in it.  This preservative has it's own unique side affect.  The new way of collecting cells has the cells in larger bags THEREFORE the patient receives less preservative.  So Bob's return of cells will take longer than normal.  On Wed. he will receive 2 bags in the morning and 2,perhaps 3 bags in the late afternoon..  Should he be only given 2 bags on Wed afternoon the last bag or #5 will be given Thurs morning.

We think that Bob is having withdrawal.  Bob has only been off of the chemo drugs a few days but after 7 years..................????Hard for us to know but he is not feeling well and had the shakes for a while.  This was not mentioned............suppose each person is different.

"Strength is not always revealed in a dramatic display: at times, it's demonstrated in determined endurance."    C. Stanley

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